Re: [PHAcommunity] Digest Number 397

2008-11-23 17:08:38

Hey Don, Jackie/GA here----How's the Tracleer working for you? Do
you think it helped you with your retreat? I'm still wondering if it is
working for me---there are times that makes me believe that it is working and
others I know it is not working. Do you ever have anxiety attacks? I have
them sometimes that I have to lay down and rest ---my breathing just is so
bad and I feel as if I can't catch my breath.
Sounds like you had a wonderful retreat------take care.
Jackie/GA

Re: ASPARTAME

2008-11-23 05:24:43

This is Beck'ys mum and I have CFS and Fibromyalgia. Somebody emailed
some stuff on the nutrasweet as well and I am wondering whether it worth
both Becky UK and I trying to avoid sweeteners. Over in UK a lot of
stuff is written on food packaging but only the minimum is written.

questions

2008-11-22 23:10:32

I've been reading the various e-mails with much interest. I was diagnosed last
fall with PH--probably primary--no know complicating factors. So far, I've had
two echoes and a chemical stress test, no clogged arteries. But the only
medication I'm taking from cardiology is Altace, which gives me a hacky dry
cough--known side effect. I take a diuretic and another BP medication. I see my
cardiologist again in a week or so. Nothing has been said about a PH specialist
(the closest ones are in Kansas City, at a hospital I refuse to go to). Do I
need to have some questions for either my internist or cardiologist next time I
visit? I see that many of you went on powerful meds within a month of your
diagnosis, and am wondering if I need to be more proactive (or aggressive).

betty-tracleer

2008-11-22 19:56:52

Hi Betty,
I was diagnosed with PPH in Sept. 2000 and was put on Flolan in Oct. 2000.
I was doing well and thank Flolan for saving my life. I am ready though to get
this darn pump off of me. I started Tracleer just 2 days ago. I looked through
all the pro's and con's and see that what you are going through are common side
effects. If you are on Flolan and Tracleer it maybe because your body is ready
to start to come down more off of the Flolan. I know I have had a headache
about an hour after taking my Tracleer pill and it lasts for a few hours and
then just fades. I am sure that these side effects will fade in time as you are
on Tracleer longer. I hope all goes well for you and welcome to our group. We
are all here for you in any way we can be.
My love and prayers,
-Amy from Arizona-

many many things

2008-11-22 15:42:13

Hi everyone,
I get the digest version right now so I get too confused to respond in a
timely manner. Funny I used to be able to think :-) It goes to my office so I
don't always have time to read the downloads here. I just got a chance to read
the last 5. Right now my husband is at home stripping the floor in a room to
put our computer, then we will be able to get online there. I can't wait.
Though why anyone would glue ugly green and black shag carpet to hardwood
floors is beyond me. Once we get it set up I'll switch my mail address to
there.
I saw my optho Monday. Now he is not sure I have PTC. My pressure was 15 or
16 on my only LP and the edema has gone down a little in my left eye, but not
the right. He said that shouldn't happen. I asked him if it isn't PTC what is
it, and he said he had no idea. I had already been on diamox and lasix for
two months before the LP that's probably why the pressure was down. Makes
sense to me. Plus I know my pressure is highest when I am premenstrual. My
blood pressure is always low and so is my temp. (usually 95.6) Maybe 15 or 16
is a high pressure for me.
He also mumbled something about drusen I asked what that meant and did not
realize until later that I didn't get an answer.
HA are only occasional now, though I did have two killers this week. If I
hadn't been a holiday weekend I would have demanded an LP.
My neuro. called me yesterday. He said he was calling to wish me a Happy New
Year and wanted to know how I have been feeling. I told him what the optho
said. He said I do to have PTC. He also said if HAs are that bad again, call
and he will do a LP and of course PMS would raise my pressure. This guy is
wonderful. If any one lives in Grand Rapids, MI area and needs a neuro., call
Gary Miller DO. He also asked me if I would mind picking up some coffee beans
from the roasters in the next block and bringing it in when I have my next
appointment in two weeks. So maybe he did have an ulterior motive. LOL I
forgot to ask him about drusen. Funny I used to be able to remember things.
:-)
Kim
P.S. Some of you know about my granddaughter who was abducted a year and a
half ago. Last week we got another web page up for her. The address is:
www.geocities.com/~helpthekids/shannon.html
This one has more photos and more info than the first one. Also some people
asked about linking their pages to the first one. This one would be the best
one to link to. Just be sure to email chldsrch@... and let them know
where you linked it . Something about building a circle. I didn't understand
that part. There is already a link to her first page there, so be sure to
check out both. There is some different info. each. If you could pass the
sites on to every one you know I would be very grateful. Ask them to pass it
on also. I know she's out there somewhere. I just need more people looking.
You know the saying about God not giving us more than we can handle. I think
that he is beginning to overestimate my strength. I pray 1999 is better.

Emailing: 432849srcmp=card-050302

2008-11-22 08:50:43

Warfarin Therapy May Modify Underlying Pathology of Angina
Focus On... Alzheimer's Disease Anthrax APN Business & Law
Asthma Bipolar Disorder Breast Cancer Depression Erectile Dysfunction Geriatric
Care Hepatitis C IBS InfluenZone Kidney Disease Menopause Multiple Sclerosis
Osteoporosis Ovarian Cancer Pain Management Schizophrenia Secondary Anemia
Serious Mental Ill Sports Medicine UTI-Zone Weight Management =================
Related Topics ================= Disaster & Trauma Dyslipidemia & HIV Health
Diversity Hospice Care Internet Healthcare Medical Privacy
Welcome, D Kim
May 10, 2002
Warfarin Therapy May Modify Underlying Pathology of Angina
NEW YORK (Reuters Health) Apr 30 - Treatment with warfarin appears
to reduce the incidence of angina, according to a report in the April 22nd issue
of the Archives of Internal Medicine. The finding supports the idea that
warfarin modifies "the pathological condition of vessel walls" involved in
coronary heart disease.
"In primary prevention, anticoagulation with warfarin sodium to an
international normalized ratio of 1.5 and 75 mg of aspirin per day each reduced
the incidence of coronary heart disease (CHD)," Dr. Tom W. Meade, of the
University of London, and colleagues note.
To examine the effects of warfarin on the development of angina and
total CHD, the researchers studied 5499 at-risk men between the ages of 45 and
69 years who were enrolled in the Thrombosis Prevention Trial. In a factorial
design, the patients received both warfarin and aspirin, either one or the
other, or placebo.
The incidence of stable angina was reduced by 16% with warfarin
treatment, although this was not significant at p = 0.26, according to the team.
The incidence was increased by 39% (p = 0.05) with aspirin. "The difference
between those taking warfarin alone and aspirin alone is now marginally
significant, with 37% fewer cases among those taking warfarin than taking
aspirin (p = 0.05)," they explain.
Total CHD was reduced by 18% with warfarin (p = 0.01), and by 8%
with aspirin (p = 0.36).
"Further research is needed to confirm or refute our findings,
because they carry potentially important implications for the primary prevention
of CHD with the use of antithrombotic agents," Dr. Meade and colleagues
conclude.
Arch Intern Med 2002;162:881-886.

Re: nutrasweet info

2008-11-21 21:04:44

Wow! This is scarry! I know that my mom had bad memory problems. She always kept
a Certs with nutrasweet in her mouth and drank diet cokes like beer. She quit
and her memory improved greatly.
I got off of diet pepsi when I started taking Diamox. The carbonation tastes
awful to me. Now I'm off of the Diamox, but haven't gotten re-addicted to the
diet pepsi. This is good enough for me to stop.
Thanks for passing on the info pink!
Lara

Re: Yay!

2008-11-21 17:28:37

Julie,
I opted for an LP shunt instead of the invasive ONSF. My doc and I weighed
the pros/cons and decided that the shunt was less risky (no chance of
blindness) and less invasive. Plus the ONSF sometimes seals back up. I know
folks have had problems with the shunts too, but revisions (from what I
understand) are not as big a deal as having the original one put in. And so
far, (knock on wood) I am having good luck with my shunt after the initial
"getting used to it" period.
Everyone must make their own decision, but I hope my input is helpful.
Just curious... why do you really not want a shunt?
Best wishes and good luck!
Lara

Re: Welcome to <a href="/group/ptc-support-group/post?postID=Oy8MhVwm-e9rIfZANlKtXe-9u6CrgDnjGWGrvnMuHncfUnuO3GlGXCZd2tcB8Hjr-eo53DJob3-J3qBHlMj9DKUdeg">ptc-support-group@onelist.com</a>

2008-11-21 08:22:28

How do you get into talk city I am completly computer stupid some times I
can wing it but haven't found the key to this yet help! help! Is there an
email list for the ptc group. Is there anyone that lives in the twin cities
area or can't we say that I don't want to do anything wrong in the group.
well good-bye for now have to go take care of my puppies they want there
supper.thanks for all of your help with everything so far. everyone. laurie

HAPPY NEW YEAR 1999 !!

2008-11-21 06:09:02

Dear Group
Wishing all of you a happy New Year and a year with PTC that is easier to live
with. Hope you all have a chance to have fun and be happy!!
Best wishes and warm regards from South Africa
Janice